Project 12: Person-centred practice in the stroke patient trajectory: A mixed-method study
Recruiting organisation: Centre for Resilience in Healthcare (SHARE), Faculty of Health Sciences, University of Stavanger, Stavanger
Supervisor: Prof. Karina Aase
Co-supervisor: Prof. Peter Dieckmann and Prof. Stephen J. M. Sollid
Doctoral Candidate: Asma Sabri
Secondments: Amsterdam Public Health research institute, Department of Public and Occupational Health, VUmc, Amsterdam, Netherlands (3 months) and Copenhagen Academy for Medical Education and Simulation, REGIONH, Copenhagen, Denmark (3 months)
Summary:
This PhD project aims to understand and support Person-centred practice in the stroke patient trajectory through:
- Mapping the characteristics of person-centred practice in the stroke patient trajectory from the literature. (Study 1)
- Understanding the experiences and perspectives of Patients, Caregivers, and Healthcare professionals regarding person-centred practice. (Study 2)
- Developing guidance to support person-centred practice in the stroke patient trajectory. (Study 3)
Background
Stroke is a major cause of death and disability worldwide, with a considerable burden on healthcare systems. This project focuses on the stroke patient trajectory which is defined within first three months post stroke-onset. Across this trajectory, person-centred practice faces distinct challenges e.g., time constraint and the patient situation constitute considerable barriers to person-centred practice in the acute setting.
In stroke care, it is important to recognise the individual’s identity and consider the influence of their life history, as well as the process of rebuilding themselves after a stroke. Studies on person-centred practice were focused on the chronic context and on selected patient groups with only few studies in the stroke setting.
Approach
The project begins with conducting a scoping review of the literature, which involves mapping and synthesising articles published on person-centred practice in the three months following the onset of stroke. This review will provide valuable insights into how person-centred practice is operationalised, how it differs throughout the stroke patient trajectory, the barriers and facilitators, and various research and practice recommendations.
The second study will use a qualitative design through interviews to map patients’ and caregivers’, and healthcare professionals’ experiences with person-centred practice during the three months following a stroke.
Based on the gaps identified in the first two studies, we will develop a practical guide to support person-centred practice in the stroke patient trajectory. This guide could take the form of an educational and learning toolfor supporting person-centred stroke care in practice or in a simulation setting. The design process will follow the Delphi method, which involves obtaining consensus from a panel of experts consisting of members from patient and family, stroke associations, as well as person-centred practice researchers and practitioners.
Our research team
Centre for Resilience in Healthcare (SHARE) constitutes Norway’s largest research group studying quality and safety in healthcare and is affiliated with the Department of Quality and Health Technology at the Faculty of Health Sciences, University of Stavanger. SHARE’s strategic vision is to become an internationally recognized research centre by reforming the understanding of quality and safety in current healthcare systems. SHARE’s main pillar is a solid base of PhD scholars conducting research in areas such as interdisciplinary teamwork and competence, co-production and involvement, telecare, regulation, evaluation of improvement measures, and analysis of healthcare processes.
The doctoral candidate will be a part of the multidisciplinary research group in SHARE consisting of 70 researchers, including nurses, medical doctors, psychologists, physiotherapists, occupational therapist, lawyers, sociologist, engineers, and safety scientists. The doctoral candidate will work in a Tools4Teams project group at SHARE involving another doctoral candidate, a project manager, and supervisors.